Waiting for the day when Bartuś will get medicine to treat SMA: donations needed [URGENT!]
86-122, Krupocin
Male, 10 years
58.90 from 13 449.77 € (0.44%)

Still needed: 13390.88 €

4 people donated in 151 days!

Donation added by: Renata Lipińska

Campaign runs from: 21 March 2017

Or you can make a payment with our traditional bank account number:

RECIPIENT:

Fundacja You Can Help

ul. Piotrkowska 222/8A

90-369 Łódź

NIP 725-210-22-41

BANK NAME: ING Bank Śląski

ACCOUNT NUMBER - FOR ALL CURRENCIES:

07 1050 1461 1000 0090 3082 3281

ACCOUNT NUMBER - ONLY FOR EURO:

81 1050 1461 1000 0090 3082 3307

IBAN: PL

SWIFT: INGBPLPW

TITLE: Bartek Lipiński - donation

“Hi! My name`s Bartuś. I was born in August 2007 and I suffer from Spinal Muscular Atrophy. It is a fatal genetic disease that destroys children`s muscular and respiratory strength, leading to a lack of ability and independency, and eventually to death by suffocation.

I was born healthy but when I was 7 months old, doctors diagnosed SMA. From that moment, I have been under a regime of systematic rehabilitation. The aim of the rehabilitation exercises is to delay disease`s progress and to keep my muscles in good condition. Giving it up may lead to the gradual, and progressive weakness of my leg and hand` muscles, and also those responsible for breathing and downing what will lead to respiratory and esophageal distress.

I cannot walk or sit independently, and I am being ventilated with the use of a respirator for 9 hours every day. It was not so long that the disease from which I suffer became terminal. The only medicine available was the rehabilitation regime, in order to delay its progress. However, recently a glimmer of hope has appeared – the medicine Nusinersen, which has been successful in clinical trials. It is possible that I could be treated with this medicine going forward but I realize that it is very expensive and unfortunately my family cannot afford it. Worse still, my family can no longer afford to pay for any further rehabilitation. For this reason, I have nowhere else to turn and would ask you for help. My only hope is that I can continue with the rehabilitation until the day when I can find a means to obtain the medicine I need. Maybe you could help my family and me?”

OUR DONORS (4)
29.71
Zbiórka do urn kwestarskich w Salonach Laser DeLux, ProClinic i LaserCare
23.05.2017
23.35
Mirosław Grzybek
19.05.2017
4.67
Anonim
22.03.2017
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