Still needed: 32678.96 €
58 people donated in 311 days!
Donation added by: Monika Trzeciak
Campaign runs from: 9 February 2017
until: 13 October 2017
Or you can make a payment with our traditional bank account number:
Fundacja You Can Help
ul. Piotrkowska 222/8A
BANK NAME: ING Bank Śląski
ACCOUNT NUMBER - FOR ALL CURRENCIES:
07 1050 1461 1000 0090 3082 3281
ACCOUNT NUMBER - ONLY FOR EURO:
81 1050 1461 1000 0090 3082 3307
TITLE: Bartek Trzeciak - donation
Bartek was born on 11.05.2011. Between the 6th and 7th month of his life, after spending many days in a hospital in Bydgoszcz, we were informed that our son was suffering from a cruel and untreatable illness…SMA. Spinal Muscular Atrophy is a neuromuscular disorder characterised by the loss of spinal cord neurones responsible for the muscle movement, as a result of which body muscles become weaker and waste away. Up until now there has been no cure for it, but there is a ray of hope – SPINRAZA (NUSINERSEN)- a drug which has passed all the phases of clinical trials. At the moment the drug is not reimbursed in Poland and we don't know if it’s ever going to be. However, it is available abroad via humanitarian access. There is a way for Bartek to get the drug in France, which gives us great hope. Unfortunately, the medicine is very expensive. Our son must also undergo regular rehabilitation to slow down the progress of the disease, so that Bartek can live until the day on which he receives the treatment. The rehabilitation is expensive as well. Today Bartek is six years old. He can't sit on his own and needs your help. That’s why we are trying to reach out to everyone with a kind and warm heart to help us raise the funds for Bartek. Please, give him a chance for a better life.
Every kind of help will bring a smile on his face. Help our son win this battle.